| O.U.C.H.
News 2008
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CH Survey Ending December 12, 2008 |
11/18/08 Due
to the overwhelming response, over 1000 completed surveys have been
obtained. The original intent was to keep the survey open
until January 30. However, the survey has already achieved the
statistical validity required to gain the attention of medical
journal review boards and for the resulting data to impress
physicians and insurance companies.
If you would like to participate in this ground breaking survey and
have not yet done so, please complete your survey no later then
December 12 at 8AM EST, which is when the survey will close.
The next step will involve analysis of the data and development of
publications for submission to one of several leading medical
journals.
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Welcome New Members |
11/01/2008 33 people joined OUCH during the
month of October 2008. OUCH welcomes you into the fold and if we can be of any assistance,
please let us know.
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CH Survey Begins |
10/13/2008
Calling All U.S. Cluster Headache
Sufferers!
An
important new survey of U.S. cluster headache sufferers begins today
and will run through January 30, 2009.
Click
here for more information
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OUCH Mall Reopens! |
10/08/2008 The OUCH Mall is once
again open for your online shopping convenience. When you make
a purchase from the links on the Mall page, a percentage comes back
to OUCH. Please help us continue to provide information and
support by shopping at the OUCH Mall! http://www.ouch-us.org/ouchmall.shtml
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Welcome New Members |
10/01/2008 27 people joined OUCH during the
month of September 2008. OUCH welcomes you into the fold and if we can be of any assistance,
please let us know.
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September Issue Ready |
09/24/2008 The Newsletter Team is pleased to announce the release of the
September 2008 Issue of the OUCH Newsletter. The latest edition can be downloaded or viewed online from the Newsletter Page:
http://www.ouch-us.org/newsletters/newsletters.shtml
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Welcome New Members |
09/01/2008 27 people joined OUCH during the
month of August 2008. OUCH welcomes you into the fold and if we can be of any assistance,
please let us know.
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August Issue Ready |
08/31/2008 The Newsletter Team is pleased to announce the release of the
August 2008 Issue of the OUCH Newsletter. The latest edition can be downloaded or viewed online from the Newsletter Page:
http://www.ouch-us.org/newsletters/newsletters.shtml
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Welcome New Members |
08/01/2008 21 people joined OUCH during the
month of July 2008. OUCH welcomes you into the fold and if we can be of any assistance,
please let us know.
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July Issue Ready |
07/31/2008 The Newsletter Team is pleased to announce the release of the
July 2008 Issue of the OUCH Newsletter. The latest edition can be downloaded or viewed online from the Newsletter Page:
http://www.ouch-us.org/newsletters/newsletters.shtml
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OUCH Officers Selected |
07/14/2008
The Board of Directors have selected the following people to lead
OUCH in 2008-2009:
Mike Day
- President
Helen
Williams - Vice President
Jim
Welch - Treasurer
Patrick
Sanford - Secretary
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Welcome New Members |
07/01/2008 25 people joined OUCH during the
month of June 2008. OUCH welcomes you into the fold and if we can be of any assistance,
please let us know.
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June Issue Ready |
06/30/2008 The Newsletter Team is pleased to announce the release of the
June 2008 Issue of the OUCH Newsletter. The latest edition can be downloaded or viewed online from the Newsletter Page:
http://www.ouch-us.org/newsletters/newsletters.shtml
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2008 BoD Election Results |
06/27/2008 We are pleased to introduce the newly elected members of your OUCH Board of Directors!!
Kathy Copelin - Elizabeth Goodman - Scott Hauser
Linda Howell - Gena Levenhagen - Paul Logue
Patrick Sanford - Jim Welch
The new directors will officially take control of the organization at the conclusion of the OUCH Convention.
In order to stagger the terms so that no more than half of the directors would be potentially leaving the Board during any election, the terms of service were divided as follows:
Two (2) year terms: 2008 - 2010
Kathy Copelin
Linda Howell
Paul Logue
Patrick Sanford
Jim Welch
One (1) year terms: 2008 - 2009
Elizabeth Goodman
Scott Hauser
Gena Levenhagen
Helen Williams and Mike Day, who currently serve on the Board, round out the half of the BoD whose terms will end in 2009.
Join us in congratulating all the incoming Directors!!!
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2008 BoD Election Update |
06/02/2008 It is our great pleasure to present the following candidates to the membership for the Board of Directors elections:
Elizabeth Goodman - Paul Logue - Patrick Sanford - Linda Howell
Scott Hauser - Jim Welch - Kathy Copelin - Gena Levenhagen
The next step in the election process is the Member Question & Answer session which is currently underway on the OUCH Business Board and will run until midnight CDT on June 15th. To access the Q & A, you will need to be registered on and log in to the Business Board. The boards will be heavily moderated and any posts that could be deemed as inappropriate will be removed immediately upon discovery.
On June 16, 2008, the actual elections will begin and run until June 26, 2008. The elections will be held on the OUCH Business Board. Since there were ten available seats and only eight applicants, the candidates are not running against each other. The vote will be for the membership to approve or disapprove the candidates serving on the Board of Directors.
The newly elected Directors will officially take office at the conclusion of the OUCH Convention.
We thank everyone who stepped up to the challenge of taking OUCH into the future.
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Welcome New Members |
06/01/2008 32 people joined OUCH during the
month of May 2008. OUCH welcomes you into the fold and if we can be of any assistance,
please let us know.
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May Issue Ready |
05/31/2008 The Newsletter Team is pleased to announce the release of the
May 2008 Issue of the OUCH Newsletter. The latest edition can be downloaded or viewed online from the Newsletter Page:
http://www.ouch-us.org/newsletters/newsletters.shtml
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Welcome New Members |
05/01/2008 32 people joined OUCH during the
month of April 2008. OUCH welcomes you into the fold and if we can be of any assistance,
please let us know.
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Convention Registration Now Open |
04/22/2008 The OUCH convention webpage is now available.
http://www.ouch-us.org/gatherings/dalcon08/08dalcon.htm
Check it out and get your registration in today!!!
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April Issue Ready |
04/20/2008 The Newsletter Team is pleased to announce the release of the
April 2008 Issue of the OUCH Newsletter. The latest edition can be downloaded or viewed online from the Newsletter Page:
http://www.ouch-us.org/newsletters/newsletters.shtml
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Member Reports Moved |
04/14/2008 Board of Director Meeting
Minutes and Quarterly Financial reports have been moved to the
Members' Area. The Annual Financial Report is still available
on the Legal Documents page.
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Welcome New Members |
04/01/2008 39 people joined OUCH during the
month of March 2008. OUCH welcomes you into the fold and if we can be of any assistance,
please let us know.
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Board of Directors Election |
03/28/2008 Board of Directors
Election Announcement
Applications are now open for the OUCH Board of
Directors
OUCH is recruiting applicants for Board of Director (BoD) members to
serve a one or two year term to begin effective the July 2008
Convention in Dallas.
OVERVIEW:
OUCH is a national nonprofit organization and is a legal entity
accountable by law for its actions, finance and operations within
the scope of its Charter. The OUCH Board of Directors is the highest
authority and the controlling level of the operations of OUCH. It
provides the direction, goals and oversight of all activities,
functions and legal affairs of OUCH.
In order to gain recognition and funding for our causes, it is
important that the OUCH Board of Directors be viewed as competitive
with other national health organizations. In order to accomplish
this and fulfill the obligations outlined in the OVERVIEW, we will
be recruiting professionals with supervisory and management
backgrounds and with specific experience and skill sets. Newly
elected directors will also complete training related to serving on
a non-profit Board of Directors, Mission of the Organization,
Organizational Structure and Policies and Procedures and will
participate in future training as it is developed.
Individuals interested in being considered will need to complete the
Director Candidate Application Form located in the Volunteer Center
of the Members’ Area on the OUCH website.
http://www.ouch-us.org/members/surveys/volunteer_application.htm
The Nominating Committee will review all applicants’ information,
conduct interviews of qualified candidates and submit those with the
necessary experience, skills and time to commit to the membership
for election to the Board of Directors.
It is highly desirable that those elected should be available to
attend the Convention this year and each year they are in office.
The Convention is the official Annual Business Meeting of OUCH and
the primary source of training for the Board and Committee Chairs.
If you have any questions about the election process
or any problems using the application form, please contact Mike at: mike.day@ouch-us.org
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March Issue Ready |
03/27/2008 The Newsletter Team is pleased to announce the release of the March 2008 Issue of the OUCH Newsletter. The Newsletter Team had a bad month in February. Everyone on the team was struck down with flu, pneumonia or other medical malady that made it impossible to get an issue out. Happily, the team is back to work doing what they do best - putting out a quality newsletter. the latest edition can be downloaded or viewed online from the Newsletter Page:
http://www.ouch-us.org/newsletters/newsletters.shtml
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Board of Directors Change |
03/25/2008 OUCH is pleased to announce the return of Linda Howell to the Board of Directors. Linda will serve on the Board until the newly elected directors take office after the upcoming elections. Thank you Linda for your dedication and willingness to serve your fellow cluster headache sufferers.
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Welcome New Members |
03/01/2008 OUCH welcomes our new members.
38 people joined our ranks during the
month of February 2008. We're sorry you had a reason to look for us,
but we're glad you found us. Please look around and check out the
information that is available. If we can be of any assistance,
please let us know.
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Financial Report |
02/13/2008
The OUCH Financial Report has been updated. See the latest
reports at: http://www.ouch-us.org/finreport.htm
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Convention Hotel Named |
02/09/2008 OUCH is pleased to
announce that the location of the 2008 Convention is:
Embassy Suites Dallas - DFW International Airport South
4650 W. Airport Freeway
Irving, Texas 75062
The room rate is $115 per night and includes:
Complimentary Full Cooked-to-Order Breakfast
Complimentary Evening Manager's Reception (soft drinks, juices, full
open bar, and dry snacks)
Complimentary Parking
Bus Parking Available
Complimentary Shuttle to and from the airport or anywhere within 3
miles of the hotel.
Nearby Attractions
Irving Mall and Movie Theatre
Ameriquest Field in Arlington
Six Flags Over Texas
Six Flags Hurricane Harbor
Texas Stadium
LoneStar Park in Grand Prairie
Advantage Sports Center
Dr. Pepper Stars Center
UTA
Golf Courses
Fine Dining, Casual Dining, and Fast Food Restaurants
You may start making reservations either by calling 1-972-313-8001
and using the Group Code OUC or you can make reservation
online by clicking
here.
Currently, you can only reserve a King Non-Smoking via the web.
For other room arrangements, please call 1-972-313-8001.
We are working on getting this corrected and will post an
update as soon as that happens.
If anyone has ANY complications whatsoever with the booking process,
please send an e-mail with your confirmation code detailing the
problem to Donna Delacerda at dd.ouch@gmail.com.
Further information on Convention Registration, Agenda, Speakers and
more will be released as soon as possible.
OUCH members, please check the Business Board for member specific
information.
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Welcome New Members |
02/01/2008 OUCH welcomes our new members.
38 people joined our ranks during the
month of January 2008. We're sorry you had a reason to look for us,
but we're glad you found us. Please look around and check out the
information that is available. If we can be of any assistance,
please let us know.
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January Issue Ready |
01/27/2008 The Newsletter Team is
pleased to announce that the January 2008 edition of the OUCH
Newsletter is ready for downloading or viewing online. Check it out
at:
http://www.ouch-us.org/newsletters/newsletters.shtml
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Convention 2008 Update |
01/19/2008 OUCH is pleased to
announce that Professor Peter Goadsby, patron saint of clusterheads,
has just confirmed that he will be speaking at the 2008 OUCH
Convention in Dallas, Texas!
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Welcome New Members |
01/01/2007 OUCH welcomes our new members.
25 people joined our ranks during the
month of December 2007. We're sorry you had a reason to look for us,
but we're glad you found us. Please look around and check out the
information that is available. If we can be of any assistance,
please let us know.
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December Issue Ready |
12/20/2007 The Newsletter Team is
pleased to announce that the November 2007 edition of the OUCH Newsletter
is ready for downloading or viewing online. Check it out at:
http://www.ouch-us.org/newsletters/newsletters.shtml
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Welcome New Members |
12/01/2007 OUCH welcomes our new members.
24 people joined our ranks during the
month of November 2007. We're sorry you had a reason to look for us,
but we're glad you found us. Please look around and check out the
information that is available. If we can be of any assistance,
please let us know.
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OUCH Website #1 |
11/21/2007 A study published Nov 13,
2007 in "Headache - The Journal of Head and Face
Pain," entitled "An Analysis of Cluster Headache
Information Provided on Internet Websites" evaluated the
quality of websites providing information on cluster headache to
patients and doctors. While we can't post the full text of the
article here, due to copyright issues, we are proud to report that
the OUCH-US website was ranked as the overall number one website for
providing cluster headache information to patients and doctors.
The abstract for the article can be found here:.
http://www.ncbi.nlm.nih.gov/sites/entrez?cmd=Retrieve&db=PubMed&list_uid
s=18005143&dopt=AbstractPlus
Unfortunately, to view the full text, readers will have to purchase
the article.
http://www.blackwell-synergy.com/doi/abs/10.1111/j.1526-4610.2007.00951.x
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November Issue Ready |
11/14/2007 The Newsletter Team is
pleased to announce that the November 2007 edition of the OUCH Newsletter
is ready for downloading or viewing online. Check it out at:
http://www.ouch-us.org/newsletters/newsletters.shtml
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Administrative Changes |
11/09/2007 The OUCH Board of Directors announces the following administrative changes:
- Michael Berger and Pete Batcheller have resigned from their positions on the Board of Directors and all committees, citing personal and work related changes that would preclude them from giving their positions at OUCH the full attention they deserve. We certainly understand that "real life" and family come first and wish them well.
Tony Amabile has resigned from his position on the Board of Directors and all committees, citing health issues that would hinder his effectiveness at OUCH. We hope that Tony can get his issues resolved and get back to full health soon.
We thank all three departing members for their hard work and dedicated service to OUCH and wish them well in whatever the future holds for them.
- The Budget Committee now consists of Brian Nemhauser (chair), Jean French, and Mike Day.
- The Funds Raising Committee is now staffed by Michelle Adamson.
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And The Winner Is |
11/07/2007 The winner of the
Supporter Appreciation Day Slogan Contest is Bill Mitchell with his
submission:
Supporters are
our true CHampions!
Congratulations to Bill and thank you to all who participated in
this contest.
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Convention 2008 Update |
11/06/2007 The deadline to submit
your proposal to host the 2008 OUCH Convention has been moved to
November 15, 2007. For more information, please see the following:
http://www.ouch-us.org/announcements/convention08.html
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Welcome New Members |
11/01/2007 OUCH welcomes our new members.
32 people joined our ranks during the
month of October 2007. We're sorry you had a reason to look for us,
but we're glad you found us. Please look around and check out the
information that is available. If we can be of any assistance,
please let us know.
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Convention 2008 Update |
10/24/2007 The OUCH Convention
Committee and Board of Directors is pleased to announce that
the Request for Proposal (RFP) form for the 2008 OUCH Convention is
now ready for downloading.
If you are interested hosting the 2008 OUCH Convention, please
either e-mail the convention committee at convention@ouch-us.org
or go to the OUCH
Conventions & Gatherings Page and download the RFP.
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Structural Changes |
10/22/07 OUCH announces the following
updates to it's committee structure:
Budget Committee: Brian Nemhauser (chair), Jean French, Tony
Amabile and Mike Day
Fund Raising Committee: Pete Batcheller (chair), Tony
Amabile (co-chair) and Michelle Adamson
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Supporters Day! |
10/22/07 OUCH announces the 2nd
Annual Supporter Appreciation Day - November 15, 2007! Also,
we are having a contest for the best Supporter Appreciation Day
slogan. Please submit your entries to contact_ouch@ouch-us.org
prior to midnight, November 1, 2007. The winning slogan will
be announced here and in the OUCH Newsletter
Clusterheads, here is your chance show your appreciation to that
special person or persons.
For more information,
click here.
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October Newsletter Ready |
10/15/2007 The Newsletter Team is
proud to announce that the October 2007 edition of the OUCH Newsletter
is ready for downloading or viewing online. Check it out at:
http://www.ouch-us.org/newsletters/newsletters.shtml
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Voting
Cycle Changes
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10/13/2007
At the Members Meeting of the 2007 OUCH
Annual Convention in Richmond, Virginia, the members in attendance
were asked to consider and approve a measure to move the election
cycle to coincide with the Annual Convention. Elections would occur
in May and the first meeting of the new Board of Directors would
take place at the convention where the outgoing officers and
directors will pass the baton to the newly elected. This would allow
for initiation and orientation of the new officers, directors and
committee members at the convention. The new leadership would be
presented to the membership at the annual members’ meeting. The
measure is also expected to help address a problem of low BoD output
between October and the holiday season. The members in attendance
approved the measure unanimously.
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Changes in the Ranks |
10/13/2007 Tony
Amabile has been appointed as our new Convention Committee Chairman.
Brian Nemhauser, Certified Public Accountant and financial
consultant, has been appointed as OUCH’s Chief Financial Advisor.
Mike Day has returned to the OUCH Board of Directors.
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BoD Meeting Minutes |
10/10/2007 The Board of Directors
Meeting Minutes page has been updated. To see the latest
additions, click:
http://www.ouch-us.org/bodminutes/minutes.htm
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Welcome New Members |
10/01/2007 OUCH welcomes our new members.
38 people joined our ranks during the
month of September 2007. We're sorry you had a reason to look for us,
but we're glad you found us. Please look around and check out the
information that is available. If we can be of any assistance,
please let us know.
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September Newsletter Ready |
09/29/2007 The Newsletter Team is
proud to announce that the September 2007 edition of the OUCH Newsletter
is ready for downloading or viewing online. Check it out at:
http://www.ouch-us.org/newsletters/newsletters.shtml
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Welcome New Members |
09/01/2007 OUCH welcomes our new members.
30 people joined our ranks during the
month of August 2007. We're sorry you had a reason to look for us,
but we're glad you found us. Please look around and check out the
information that is available. If we can be of any assistance,
please let us know.
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August Newsletter Ready |
08/02/2007 The Newsletter Team is
proud to announce that the August 2007 edition of the OUCH Newsletter
is ready for downloading or viewing online. Check it out at:
http://www.ouch-us.org/newsletters/newsletters.shtml
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Welcome New Members |
08/01/2007 OUCH welcomes our new members.
31 people joined our ranks during the
month of July 2007. We're sorry you had a reason to look for us,
but we're glad you found us. Please look around and check out the
information that is available. If we can be of any assistance,
please let us know.
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July Newsletter Ready |
07/03/2007 The Newsletter Team is
proud to announce that the July 2007 edition of the OUCH Newsletter
is ready for downloading or viewing online. Check it out at:
http://www.ouch-us.org/newsletters/newsletters.shtml
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Welcome New Members |
07/01/2007 OUCH welcomes our new members.
19 people joined our ranks during the
month of June 2007. We're sorry you had a reason to look for us,
but we're glad you found us. Please look around and check out the
information that is available. If we can be of any assistance,
please let us know.
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Welcome New Members |
06/01/2007 OUCH welcomes our new members.
43 people joined our ranks during the
month of May 2007. We're sorry you had a reason to look for us,
but we're glad you found us. Please look around and check out the
information that is available. If we can be of any assistance,
please let us know.
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June Newsletter Ready |
05/31/2007 The Newsletter Team is
proud to announce that the June 2007 edition of the OUCH Newsletter
is ready for downloading or viewing online. Check it out at:
http://www.ouch-us.org/newsletters/newsletters.shtml
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O2 Support Pages Created |
05/21/2007
In order to provide better support for cluster headache sufferers,
OUCH has created the Oxygen Users Support Team. We have also
developed a set of web pages to provide information and way for
those using or interested in using medical O2 to ask questions and
provide feedback directly to the O2 Support Team Members.
Check it out at:
http://www.ouch-us.org/medications/oxygen/o2info.shtml
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May Newsletter Ready |
05/03/2007 The Newsletter Team is
proud to announce that the May 2007 edition of the OUCH Newsletter
is ready for downloading or viewing online. Check it out at:
http://www.ouch-us.org/newsletters/newsletters.shtml
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Welcome New Members |
05/01/2007 OUCH welcomes our new members.
26 people joined our ranks during the
month of April 2007. We're sorry you had a reason to look for us,
but we're glad you found us. Please look around and check out the
information that is available. If we can be of any assistance,
please let us know.
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April Newsletter Ready |
04/02/2007 The Newsletter Team is
proud to announce that the April 2007 edition of the OUCH Newsletter
is ready for downloading or viewing online. Check it out at:
http://www.ouch-us.org/newsletters/newsletters.shtml
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Welcome New Members |
04/01/2007 OUCH welcomes our new members.
28 people joined our ranks during the
month of March 2007. We're sorry you had a reason to look for us,
but we're glad you found us. Please look around and check out the
information that is available. If we can be of any assistance,
please let us know. |
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Welcome New Directors |
04/01/2007 Join us in welcoming the
newest additions to the OUCH Board of Directors. Anthony
Amabile, Bill Mitchell, Pete Batcheller and Brian Nemhauser.
Thanks for stepping up, gentelmen! |
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Welcome New Members |
03/01/2007 OUCH welcomes our new members.
26 people joined our ranks during the
month of February 2007. We're sorry you had a reason to look for us,
but we're glad you found us. Please look around and check out the
information that is available. If we can be of any assistance,
please let us know. |
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March Newsletter Ready |
02/21/2007 The Newsletter Team is
proud to announce that the March 2007 edition of the OUCH Newsletter
is ready for downloading or viewing online. Check it out at:
http://www.ouch-us.org/newsletters/newsletters.shtml
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GSK Settlement Info |
02/21/2007
GlaxoSmithKline Class Action Settlement Information
There is
a Proposed Settlement with GlaxoSmithKline (GSK), one of the
Defendants in a class action lawsuit pending in the U.S. District
Court for the District of Massachusetts. The name of the lawsuit is
In re: Pharmaceutical Average Wholesale Price Litigation, Docket No.
01-CV-12257-PBS, MDL No. 1456.
For more
information, see the March 2007 edition of the OUCH Newsletter or go
to:
http://www.gsksettlement.com/glaxo/consumer_en/FAQs.htm
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Welcome New Members |
02/01/2007
OUCH welcomes our new members. 38 people joined our ranks during the
month of January 2007. We're sorry you had a reason to look for us,
but we're glad you found us. Please look around and check out the
information that is available. If we can be of any assistance,
please let us know. |
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February Newsletter Ready |
01/31/2007
The Newsletter Team is proud to announce that the February 2007
edition of the OUCH Newsletter is ready for downloading or viewing
online. Check it out at:
http://www.ouch-us.org/newsletters/newsletters.shtml
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Welcome New Members |
01/01/2007
OUCH welcomes our new members. 33 people joined our ranks during the
month of December 2006. We're sorry you had a reason to look for us,
but we're glad you found us. Please look around and check out the
information that is available. If we can be of any assistance,
please let us know.
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