O.U.C.H. News 2008

 

CH Survey Ending December 12, 2008 11/18/08     Due to the overwhelming response, over 1000 completed surveys have been obtained.  The original intent was to keep the survey open until January 30.  However, the survey has already achieved the statistical validity required to gain the attention of medical journal review boards and for the resulting data to impress physicians and insurance companies.  

If you would like to participate in this ground breaking survey and have not yet done so, please complete your survey no later then December 12 at 8AM EST, which is when the survey will close.

The next step will involve analysis of the data and development of publications for submission to one of several leading medical journals.
Welcome New Members 11/01/2008     33 people joined OUCH during the month of October 2008. OUCH welcomes you into the fold and if we can be of any assistance, please let us know.
CH Survey Begins

10/13/2008     Calling All U.S. Cluster Headache Sufferers!

An important new survey of U.S. cluster headache sufferers begins today and will run through January 30, 2009.  

Click here for more information

OUCH Mall Reopens! 10/08/2008     The OUCH Mall is once again open for your online shopping convenience.  When you make a purchase from the links on the Mall page, a percentage comes back to OUCH.  Please help us continue to provide information and support by shopping at the OUCH Mall!

http://www.ouch-us.org/ouchmall.shtml

Welcome New Members 10/01/2008     27 people joined OUCH during the month of September 2008. OUCH welcomes you into the fold and if we can be of any assistance, please let us know.
September Issue Ready 09/24/2008     The Newsletter Team is pleased to announce the release of the September 2008 Issue of the OUCH Newsletter. The latest edition can be downloaded or viewed online from the Newsletter Page:

http://www.ouch-us.org/newsletters/newsletters.shtml
Welcome New Members 09/01/2008     27 people joined OUCH during the month of August 2008. OUCH welcomes you into the fold and if we can be of any assistance, please let us know.
August Issue Ready 08/31/2008     The Newsletter Team is pleased to announce the release of the August 2008 Issue of the OUCH Newsletter. The latest edition can be downloaded or viewed online from the Newsletter Page:

http://www.ouch-us.org/newsletters/newsletters.shtml
Welcome New Members 08/01/2008     21 people joined OUCH during the month of July 2008. OUCH welcomes you into the fold and if we can be of any assistance, please let us know.
July Issue Ready 07/31/2008     The Newsletter Team is pleased to announce the release of the July 2008 Issue of the OUCH Newsletter. The latest edition can be downloaded or viewed online from the Newsletter Page:

http://www.ouch-us.org/newsletters/newsletters.shtml
OUCH Officers Selected

07/14/2008     The Board of Directors have selected the following people to lead OUCH in 2008-2009:

 

Mike Day - President

Helen Williams - Vice President

Jim Welch - Treasurer

Patrick Sanford - Secretary

Welcome New Members 07/01/2008     25 people joined OUCH during the month of June 2008. OUCH welcomes you into the fold and if we can be of any assistance, please let us know.
June Issue Ready 06/30/2008     The Newsletter Team is pleased to announce the release of the June 2008 Issue of the OUCH Newsletter. The latest edition can be downloaded or viewed online from the Newsletter Page:

http://www.ouch-us.org/newsletters/newsletters.shtml
2008 BoD Election Results

06/27/2008     We are pleased to introduce the newly elected members of your OUCH Board of Directors!!

Kathy Copelin - Elizabeth Goodman - Scott Hauser
Linda Howell - Gena Levenhagen - Paul Logue 
Patrick Sanford - Jim Welch

The new directors will officially take control of the organization at the conclusion of the OUCH Convention.

In order to stagger the terms so that no more than half of the directors would be potentially leaving the Board during any election, the terms of service were divided as follows:

Two (2) year terms: 2008 - 2010

Kathy Copelin
Linda Howell
Paul Logue 
Patrick Sanford
Jim Welch

One (1) year terms: 2008 - 2009

Elizabeth Goodman
Scott Hauser
Gena Levenhagen

Helen Williams and Mike Day, who currently serve on the Board, round out the half of the BoD whose terms will end in 2009.

Join us in congratulating all the incoming Directors!!!

2008 BoD Election Update 06/02/2008     It is our great pleasure to present the following candidates to the membership for the Board of Directors elections:

Elizabeth Goodman - Paul Logue - Patrick Sanford - Linda Howell 

Scott Hauser - Jim Welch - Kathy Copelin - Gena Levenhagen 

The next step in the election process is the Member Question & Answer session which is currently underway on the OUCH Business Board and will run until midnight CDT on June 15th. To access the Q & A, you will need to be registered on and log in to the Business Board. The boards will be heavily moderated and any posts that could be deemed as inappropriate will be removed immediately upon discovery. 

On June 16, 2008, the actual elections will begin and run until June 26, 2008. The elections will be held on the OUCH Business Board. Since there were ten available seats and only eight applicants, the candidates are not running against each other. The vote will be for the membership to approve or disapprove the candidates serving on the Board of Directors.

The newly elected Directors will officially take office at the conclusion of the OUCH Convention.

We thank everyone who stepped up to the challenge of taking OUCH into the future. 

Welcome New Members 06/01/2008     32 people joined OUCH during the month of May 2008. OUCH welcomes you into the fold and if we can be of any assistance, please let us know.
May Issue Ready 05/31/2008     The Newsletter Team is pleased to announce the release of the May  2008 Issue of the OUCH Newsletter. The latest edition can be downloaded or viewed online from the Newsletter Page:

http://www.ouch-us.org/newsletters/newsletters.shtml
Welcome New Members 05/01/2008     32 people joined OUCH during the month of April 2008. OUCH welcomes you into the fold and if we can be of any assistance, please let us know.
Convention Registration Now Open 04/22/2008     The OUCH convention webpage is now available. 

http://www.ouch-us.org/gatherings/dalcon08/08dalcon.htm

Check it out and get your registration in today!!!

April Issue Ready 04/20/2008     The Newsletter Team is pleased to announce the release of the April  2008 Issue of the OUCH Newsletter. The latest edition can be downloaded or viewed online from the Newsletter Page:

http://www.ouch-us.org/newsletters/newsletters.shtml
Member Reports Moved 04/14/2008     Board of Director Meeting Minutes and Quarterly Financial reports have been moved to the Members' Area.  The Annual Financial Report is still available on the Legal Documents page.
Welcome New Members 04/01/2008     39 people joined OUCH during the month of March 2008. OUCH welcomes you into the fold and if we can be of any assistance, please let us know.
Board of Directors Election 03/28/2008     Board of Directors Election Announcement

Applications are now open for the OUCH Board of Directors

OUCH is recruiting applicants for Board of Director (BoD) members to serve a one or two year term to begin effective the July 2008 Convention in Dallas.
 
OVERVIEW:
OUCH is a national nonprofit organization and is a legal entity accountable by law for its actions, finance and operations within the scope of its Charter. The OUCH Board of Directors is the highest authority and the controlling level of the operations of OUCH. It provides the direction, goals and oversight of all activities, functions and legal affairs of OUCH.
 
In order to gain recognition and funding for our causes, it is important that the OUCH Board of Directors be viewed as competitive with other national health organizations. In order to accomplish this and fulfill the obligations outlined in the OVERVIEW, we will be recruiting professionals with supervisory and management backgrounds and with specific experience and skill sets. Newly elected directors will also complete training related to serving on a non-profit Board of Directors, Mission of the Organization, Organizational Structure and Policies and Procedures and will participate in future training as it is developed.
 
Individuals interested in being considered will need to complete the Director Candidate Application Form located in the Volunteer Center of the Members’ Area on the OUCH website.
 
http://www.ouch-us.org/members/surveys/volunteer_application.htm
 
The Nominating Committee will review all applicants’ information, conduct interviews of qualified candidates and submit those with the necessary experience, skills and time to commit to the membership for election to the Board of Directors.
 
It is highly desirable that those elected should be available to attend the Convention this year and each year they are in office. The Convention is the official Annual Business Meeting of OUCH and the primary source of training for the Board and Committee Chairs.

If you have any questions about the election process or any problems using the application form, please contact Mike at: mike.day@ouch-us.org

March Issue Ready 03/27/2008     The Newsletter Team is pleased to announce the release of the March 2008 Issue of the OUCH Newsletter. The Newsletter Team had a bad month in February. Everyone on the team was struck down with flu, pneumonia or other medical malady that made it impossible to get an issue out. Happily, the team is back to work doing what they do best - putting out a quality newsletter. the latest edition can be downloaded or viewed online from the Newsletter Page:

http://www.ouch-us.org/newsletters/newsletters.shtml
Board of Directors Change 03/25/2008     OUCH is pleased to announce the return of Linda Howell to the Board of Directors. Linda will serve on the Board until the newly elected directors take office after the upcoming elections. Thank you Linda for your dedication and willingness to serve your fellow cluster headache sufferers. 
Welcome New Members 03/01/2008     OUCH welcomes our new members. 38 people joined our ranks during the month of February 2008. We're sorry you had a reason to look for us, but we're glad you found us. Please look around and check out the information that is available. If we can be of any assistance, please let us know.
Financial Report

02/13/2008     The OUCH Financial Report has been updated.  See the latest reports at:     http://www.ouch-us.org/finreport.htm

 

Convention Hotel Named 02/09/2008     OUCH is pleased to announce that the location of the 2008 Convention is:

Embassy Suites Dallas - DFW International Airport South
4650 W. Airport Freeway  
Irving, Texas  75062  
 
The room rate is $115 per night and includes:  
 
Complimentary Full Cooked-to-Order Breakfast  
Complimentary Evening Manager's Reception (soft drinks, juices, full open bar, and dry snacks)  
Complimentary Parking  
Bus Parking Available  
Complimentary Shuttle to and from the airport or anywhere within 3 miles of the hotel.

Nearby Attractions  
Irving Mall and Movie Theatre  
Ameriquest Field in Arlington  
Six Flags Over Texas  
Six Flags Hurricane Harbor  
Texas Stadium  
LoneStar Park in Grand Prairie
Advantage Sports Center  
Dr. Pepper Stars Center  
UTA  
Golf Courses  
Fine Dining, Casual Dining, and Fast Food Restaurants  
 
You may start making reservations either by calling 1-972-313-8001 and using the Group Code OUC or you can make reservation online by clicking here.
  
Currently, you can only reserve a King Non-Smoking via the web.  For other room arrangements, please call 1-972-313-8001.  We are working on getting this corrected and will post an update as soon as that happens.
 
If anyone has ANY complications whatsoever with the booking process, please send an e-mail with your confirmation code detailing the problem to Donna Delacerda at dd.ouch@gmail.com.  
 
Further information on Convention Registration, Agenda, Speakers and more will be released as soon as possible.  

OUCH members, please check the Business Board for member specific information.

Welcome New Members 02/01/2008     OUCH welcomes our new members. 38 people joined our ranks during the month of January 2008. We're sorry you had a reason to look for us, but we're glad you found us. Please look around and check out the information that is available. If we can be of any assistance, please let us know.
January Issue Ready 01/27/2008     The Newsletter Team is pleased to announce that the January 2008 edition of the OUCH Newsletter is ready for downloading or viewing online. Check it out at:

 

http://www.ouch-us.org/newsletters/newsletters.shtml

 

Convention 2008 Update 01/19/2008     OUCH is pleased to announce that Professor Peter Goadsby, patron saint of clusterheads, has just confirmed that he will be speaking at the 2008 OUCH Convention in Dallas, Texas!
 
Welcome New Members 01/01/2007     OUCH welcomes our new members. 25 people joined our ranks during the month of December 2007. We're sorry you had a reason to look for us, but we're glad you found us. Please look around and check out the information that is available. If we can be of any assistance, please let us know.
December Issue Ready 12/20/2007     The Newsletter Team is pleased to announce that the November 2007 edition of the OUCH Newsletter is ready for downloading or viewing online. Check it out at:

 

http://www.ouch-us.org/newsletters/newsletters.shtml

 

Welcome New Members 12/01/2007     OUCH welcomes our new members. 24 people joined our ranks during the month of November 2007. We're sorry you had a reason to look for us, but we're glad you found us. Please look around and check out the information that is available. If we can be of any assistance, please let us know.
OUCH Website #1 11/21/2007     A study published Nov 13, 2007 in  "Headache - The Journal of Head and Face Pain," entitled "An Analysis of Cluster Headache Information Provided on Internet Websites" evaluated the quality of websites providing information on cluster headache to patients and doctors.  While we can't post the full text of the article here, due to copyright issues, we are proud to report that the OUCH-US website was ranked as the overall number one website for providing cluster headache information to patients and doctors.  
 
The abstract for the article can be found here:.
 
http://www.ncbi.nlm.nih.gov/sites/entrez?cmd=Retrieve&db=PubMed&list_uid s=18005143&dopt=AbstractPlus
 
Unfortunately, to view the full text, readers will have to purchase the article.
 
http://www.blackwell-synergy.com/doi/abs/10.1111/j.1526-4610.2007.00951.x
 
November Issue Ready 11/14/2007     The Newsletter Team is pleased to announce that the November 2007 edition of the OUCH Newsletter is ready for downloading or viewing online. Check it out at:

 

http://www.ouch-us.org/newsletters/newsletters.shtml

 

Administrative Changes 11/09/2007     The OUCH Board of Directors announces the following administrative changes:
  • Michael Berger and Pete Batcheller have resigned from their positions on the Board of Directors and all committees, citing personal and work related changes that would preclude them from giving their positions at OUCH the full attention they deserve. We certainly understand that "real life" and family come first and wish them well.

    Tony Amabile has resigned from his position on the Board of Directors and all committees, citing health issues that would hinder his effectiveness at OUCH. We hope that Tony can get his issues resolved and get back to full health soon.

    We thank all three departing members for their hard work and dedicated service to OUCH and wish them well in whatever the future holds for them.
  • The Budget Committee now consists of Brian Nemhauser (chair), Jean French, and Mike Day.
  • The Funds Raising Committee is now staffed by Michelle Adamson.
And The Winner Is 11/07/2007     The winner of the Supporter Appreciation Day Slogan Contest is Bill Mitchell with his submission:

Supporters are our true CHampions!

Congratulations to Bill and thank you to all who participated in this contest.

Convention 2008 Update 11/06/2007     The deadline to submit your proposal to host the 2008 OUCH Convention has been moved to November 15, 2007.  For more information, please see the following:

http://www.ouch-us.org/announcements/convention08.html

Welcome New Members 11/01/2007     OUCH welcomes our new members. 32 people joined our ranks during the month of October 2007. We're sorry you had a reason to look for us, but we're glad you found us. Please look around and check out the information that is available. If we can be of any assistance, please let us know.
Convention 2008 Update 10/24/2007     The OUCH Convention Committee and Board of Directors is pleased  to announce that the Request for Proposal (RFP) form for the 2008 OUCH Convention is now ready for downloading.
 
If you are interested hosting the 2008 OUCH Convention, please either e-mail the convention committee at convention@ouch-us.org or go to the OUCH Conventions & Gatherings Page and download the RFP.
Structural Changes 10/22/07     OUCH announces the following updates to it's committee structure:

Budget Committee: Brian Nemhauser (chair), Jean French, Tony Amabile and Mike Day

Fund Raising Committee:  Pete Batcheller (chair), Tony Amabile (co-chair) and Michelle Adamson

Supporters Day! 10/22/07     OUCH announces the 2nd Annual Supporter Appreciation Day - November 15, 2007!  Also, we are having a contest for the best Supporter Appreciation Day slogan.  Please submit your entries to contact_ouch@ouch-us.org prior to midnight, November 1, 2007.  The winning slogan will be announced here and in the OUCH Newsletter 

Clusterheads, here is your chance show your appreciation to that special person or persons.  

For more information, click here.

October Newsletter Ready 10/15/2007     The Newsletter Team is proud to announce that the October 2007 edition of the OUCH Newsletter is ready for downloading or viewing online. Check it out at:

 

http://www.ouch-us.org/newsletters/newsletters.shtml

 

Voting Cycle Changes

 

10/13/2007     At the Members Meeting of the 2007 OUCH Annual Convention in Richmond, Virginia, the members in attendance were asked to consider and approve a measure to move the election cycle to coincide with the Annual Convention. Elections would occur in May and the first meeting of the new Board of Directors would take place at the convention where the outgoing officers and directors will pass the baton to the newly elected. This would allow for initiation and orientation of the new officers, directors and committee members at the convention. The new leadership would be presented to the membership at the annual members’ meeting. The measure is also expected to help address a problem of low BoD output between October and the holiday season. The members in attendance approved the measure unanimously.

 

Changes in the Ranks 10/13/2007     Tony Amabile has been appointed as our new Convention Committee Chairman.

Brian Nemhauser, Certified Public Accountant and financial consultant, has been appointed as OUCH’s Chief Financial Advisor.

Mike Day has returned to the OUCH Board of Directors.

BoD Meeting Minutes 10/10/2007     The Board of Directors Meeting Minutes page has been updated.  To see the latest additions, click:

http://www.ouch-us.org/bodminutes/minutes.htm

Welcome New Members 10/01/2007     OUCH welcomes our new members. 38 people joined our ranks during the month of September 2007. We're sorry you had a reason to look for us, but we're glad you found us. Please look around and check out the information that is available. If we can be of any assistance, please let us know.
September Newsletter Ready 09/29/2007     The Newsletter Team is proud to announce that the September 2007 edition of the OUCH Newsletter is ready for downloading or viewing online. Check it out at:

 

http://www.ouch-us.org/newsletters/newsletters.shtml

 

Welcome New Members 09/01/2007     OUCH welcomes our new members. 30 people joined our ranks during the month of August 2007. We're sorry you had a reason to look for us, but we're glad you found us. Please look around and check out the information that is available. If we can be of any assistance, please let us know.
August Newsletter Ready 08/02/2007     The Newsletter Team is proud to announce that the August 2007 edition of the OUCH Newsletter is ready for downloading or viewing online. Check it out at:

 

http://www.ouch-us.org/newsletters/newsletters.shtml

 

Welcome New Members 08/01/2007     OUCH welcomes our new members. 31 people joined our ranks during the month of July 2007. We're sorry you had a reason to look for us, but we're glad you found us. Please look around and check out the information that is available. If we can be of any assistance, please let us know.
July Newsletter Ready 07/03/2007     The Newsletter Team is proud to announce that the July 2007 edition of the OUCH Newsletter is ready for downloading or viewing online. Check it out at:

 

http://www.ouch-us.org/newsletters/newsletters.shtml

 

Welcome New Members 07/01/2007     OUCH welcomes our new members. 19 people joined our ranks during the month of June 2007. We're sorry you had a reason to look for us, but we're glad you found us. Please look around and check out the information that is available. If we can be of any assistance, please let us know.
Welcome New Members 06/01/2007     OUCH welcomes our new members. 43 people joined our ranks during the month of May 2007. We're sorry you had a reason to look for us, but we're glad you found us. Please look around and check out the information that is available. If we can be of any assistance, please let us know.
June Newsletter Ready 05/31/2007     The Newsletter Team is proud to announce that the June 2007 edition of the OUCH Newsletter is ready for downloading or viewing online. Check it out at:

 

http://www.ouch-us.org/newsletters/newsletters.shtml

 

O2 Support Pages Created

05/21/2007    In order to provide better support for cluster headache sufferers, OUCH has created the Oxygen Users Support Team.  We have also developed a set of web pages to provide information and way for those using or interested in using medical O2 to ask questions and provide feedback directly to the O2 Support Team Members.  Check it out at:

 

http://www.ouch-us.org/medications/oxygen/o2info.shtml

 

May Newsletter Ready 05/03/2007     The Newsletter Team is proud to announce that the May 2007 edition of the OUCH Newsletter is ready for downloading or viewing online. Check it out at:

 

http://www.ouch-us.org/newsletters/newsletters.shtml

 

Welcome New Members 05/01/2007     OUCH welcomes our new members. 26 people joined our ranks during the month of April 2007. We're sorry you had a reason to look for us, but we're glad you found us. Please look around and check out the information that is available. If we can be of any assistance, please let us know.
April Newsletter Ready 04/02/2007     The Newsletter Team is proud to announce that the April 2007 edition of the OUCH Newsletter is ready for downloading or viewing online. Check it out at:

 

http://www.ouch-us.org/newsletters/newsletters.shtml

 

Welcome New Members 04/01/2007     OUCH welcomes our new members. 28 people joined our ranks during the month of March 2007. We're sorry you had a reason to look for us, but we're glad you found us. Please look around and check out the information that is available. If we can be of any assistance, please let us know.
Welcome New Directors 04/01/2007     Join us in welcoming the newest additions to the OUCH Board of Directors.  Anthony Amabile, Bill Mitchell, Pete Batcheller and Brian Nemhauser.  Thanks for stepping up, gentelmen!
Welcome New Members 03/01/2007     OUCH welcomes our new members. 26 people joined our ranks during the month of February 2007. We're sorry you had a reason to look for us, but we're glad you found us. Please look around and check out the information that is available. If we can be of any assistance, please let us know.
March Newsletter Ready 02/21/2007     The Newsletter Team is proud to announce that the March 2007 edition of the OUCH Newsletter is ready for downloading or viewing online. Check it out at:

 

http://www.ouch-us.org/newsletters/newsletters.shtml

 

GSK Settlement Info

02/21/2007     GlaxoSmithKline Class Action Settlement Information

 

There is a Proposed Settlement with GlaxoSmithKline (GSK), one of the Defendants in a class action lawsuit pending in the U.S. District Court for the District of Massachusetts. The name of the lawsuit is In re: Pharmaceutical Average Wholesale Price Litigation, Docket No. 01-CV-12257-PBS, MDL No. 1456.

 

For more information, see the March 2007 edition of the OUCH Newsletter or go to:

 

http://www.gsksettlement.com/glaxo/consumer_en/FAQs.htm

 

Welcome New Members 

02/01/2007     OUCH welcomes our new members. 38 people joined our ranks during the month of January 2007. We're sorry you had a reason to look for us, but we're glad you found us. Please look around and check out the information that is available. If we can be of any assistance, please let us know.

February Newsletter Ready 

01/31/2007     The Newsletter Team is proud to announce that the February 2007 edition of the OUCH Newsletter is ready for downloading or viewing online. Check it out at:

 

http://www.ouch-us.org/newsletters/newsletters.shtml

 

Welcome New Members 

01/01/2007     OUCH welcomes our new members. 33 people joined our ranks during the month of December 2006. We're sorry you had a reason to look for us, but we're glad you found us. Please look around and check out the information that is available. If we can be of any assistance, please let us know.