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Here is a short video diary of the 2006 convention
for your enjoyment and information.
At Milcon, between Lori Choyce's presentation and Svenn's presentation, we were entertained by ASB's daughter Teresa and the Badger Band. Everyone enjoyed it - some more than others...LOL
Chicken Dance Anyone?
http://www.ouch-us.org/gatherings/milcon06/chickendance1.wmv
The band had us all on our feet and drew hotel staff and guests from all around, smiling and clapping and dancing.
But wait, who's the guest conductor?
http://www.ouch-us.org/gatherings/milcon06/badgerblake.wmv
Of course it wasn't all fun and games. There was a serious side as well. Those who wished to do so participated in the Zomig NS study right there at the convention.
Lori Choyce (NECH) announced a new clinical trial coming out around the end of the year, studying Civimide as a preventative.:
http://www.ouch-us.org/gatherings/milcon06/choyce-winstoncivimide.wmv
Supporters are probably the most important people in ours lives. Yes we see the doctors once in a while and get this or that med, but our supporters keep us going. They advocate for us with our doctors, console us when we are feeling down and kick us in the ass when we start letting things get to us.
At the beginning of Svenn's presentation, he had us do something we should be doing every day.
http://www.ouch-us.org/gatherings/milcon06/applaudesupporters.wmv
Dr. Sewell drove home the point that we must actively advocate for ourselves in order with this little exercise:
http://www.ouch-us.org/gatherings/milcon06/sewell-prevalenceofch.wmv
He showed us that one or two people CAN make a difference:
http://www.ouch-us.org/gatherings/milcon06/sewell-videohelps.wmv
Dr. Sewell kind of stepped in it a little bit when talking about the age of CH onset:
http://www.ouch-us.org/gatherings/milcon06/sewell-stepsinit.wmv
Dr. Sewell praised the creation of C.H.A.T.S. He stated there was no way he could have gotten a grant to have the software written, but because of the activism by OUCH members, there was a useful tool for collecting data. It has already been approved for use by the Harvard IRB and should be put into use shortly. Dr. Sewell made the following statement:
http://www.ouch-us.org/gatherings/milcon06/sewell-svenn&dan.wmv
Way to go guys!
Finally, Dr. Sewell announced that because of pilot data provided by Clusterbusters and members of the cluster headache community, he would be submitting grant paperwork for a Kudzu trial this October.
Dr Halpern spoke mainly of the issues involved in getting the psilocybin study going. He also spoke to some of the legal issues, such as seeds:
http://www.ouch-us.org/gatherings/milcon06/halpern-seedsillegal.wmv
Dr. Halpern explains that this type of research could be dangerous to a research career.
http://www.ouch-us.org/gatherings/milcon06/halpern-waryoflsd.wmv
Dr Halpern describes the cost of getting this study through drug development
http://www.ouch-us.org/gatherings/milcon06/halpern-cost.wmv
Dr Halpern explains that the study will likely get no federal money
http://www.ouch-us.org/gatherings/milcon06/halpern-nofedmoney.wmv
Feeling at first meeting with CB.
http://www.ouch-us.org/gatherings/milcon06/halpern-can'tdothat.wmv
Why continue?
http://www.ouch-us.org/gatherings/milcon06/halpern-2chsuicides.wmv
We have a friend? in the DEA & FDA..
http://www.ouch-us.org/gatherings/milcon06/halpern-friendlydeafda.wmv
Basically, Dr. Halpern says there are many legal, political and financial hurdles in the way and it will take more time than we think it should, but there is a possibility that this study could take place and lead to an effective treatment for CH. While we are waiting, advocacy groups need to keep it in the public eye and keep the focus on the medical aspects of psilocybin/lsd.
Dr. Sewell re-interjects a note of hope
http://www.ouch-us.org/gatherings/milcon06/sewell-halpern-hope.wmv
So what should OUCH's position be on psilocybin/lsd?
http://www.ouch-us.org/gatherings/milcon06/sewell-halpern-ouchposition.wmv
The underlying theme of all speakers during the convention was advocacy. We need to educate the public and those doctors who are unfamiliar with CH. We need to be more active in getting CH in the public eye (so to speak) and in raising money for research.
Saturday, after the last of the presentations, there was our banquet, awards ceremony, entertainment and auction.
The first award: The Bob Kipple Award for Service to the Cluster Headache Community:
Dialuppers, I apologize for the size of this (2.45MB). I cut out a lot of applause and extra stuff to get down this far.
http://www.ouch-us.org/gatherings/milcon06/kipaward.wmv
Next we thanked this year's convention committee: Rori Lockman, Elizabeth Goodman, and Tina Brown (accepted by her husband, Ramon)
http://www.ouch-us.org/gatherings/milcon06/convcomthanks.wmv
The remainder of the awards were awarded as follows:
Lifetime Membership - Michelle Adamson & Linda Howell
http://www.ouch-us.org/gatherings/milcon06/lifetime-mast.wmv
http://www.ouch-us.org/gatherings/milcon06/lifetime-linda.wmv
Supporters of the Year - Elizabeth Goodman & Pam King
http://www.ouch-us.org/gatherings/milcon06/supporter-asb.wmv
http://www.ouch-us.org/gatherings/milcon06/supporter-pam.wmv
Youngest Clusterhead - Jasper Kemp
http://www.ouch-us.org/gatherings/milcon06/youngest-jasper.wmv
Dedication is Service - Melissa Filtz
http://www.ouch-us.org/gatherings/milcon06/dedication-mel.wmv
Golden Regulator - Ben "Clustermasx" Khan
http://www.ouch-us.org/gatherings/milcon06/goldenreg-khan.wmv
Comedic Relief - Helen Kemp
http://www.ouch-us.org/gatherings/milcon06/comedic-helen.wmv
Lois Lane - Anita Wiseman
http://www.ouch-us.org/gatherings/milcon06/loislane-nani.wmv
The Odd Couple - Charlie Strand & Matt Matlock
http://www.ouch-us.org/gatherings/milcon06/oddcouple-charlie-matt.wmv
Pay it Forward - Linda Howell
http://www.ouch-us.org/gatherings/milcon06/payitforward-linda.wmv
Volunteer of the Year - Rori Lockman
http://www.ouch-us.org/gatherings/milcon06/volunteerofyear-rori.wmv
And that was supposed to be it, but they snuck this one in on me:
Excellence in Service - Mike Day
http://www.ouch-us.org/gatherings/milcon06/excellenceinservice-mike.wmv
And that was it - or was it? Another award got snuck into the program presented by Michelle Adamson:
Fearless Leader - Donna Delacerda
http://www.ouch-us.org/gatherings/milcon06/fearlessleader-donna.wmv
Next came the entertainment and it definitely was entertaining. In the "game show," contestants Donna, Blake and Helen were blindfolded and had to ask yes or no questions to guess the name, occupation and whether the subjects - Jasmyn & Bob (BlueMeanie) - were episodic or chronic.
Helen asked Jas if she was shorter than her. Donna replied, "No one's shorter than you." Helen replied...well, watch her reply
http://www.ouch-us.org/gatherings/milcon06/game-helen-bird.wmv
Helen revels in asking a good question...
http://www.ouch-us.org/gatherings/milcon06/helen-ahah.wmv
Donna congratulates Helen on her correct guess resulting in the famous "High Five"
http://www.ouch-us.org/gatherings/milcon06/1sthighfive.wmv
Blake couldn't wait to ask a question..
http://www.ouch-us.org/gatherings/milcon06/blake-gotagoodone.wmv
The crowd gets involved...
http://www.ouch-us.org/gatherings/milcon06/highfive.wmv
Blake doesn't like being told no...
http://www.ouch-us.org/gatherings/milcon06/blake-tiredofhim.wmv
Donna asks, "Is this my water?" uh, Donna...he's blindfolded...
http://www.ouch-us.org/gatherings/milcon06/isthismywater.wmv
The game ended with everyone giving a high five
http://www.ouch-us.org/gatherings/milcon06/allhighfive.wmv
Just gotta do this. Sorry Donna...
http://www.ouch-us.org/gatherings/milcon06/highfive-youdawoman.wmv
Well, this has been a fun trip down memory lane. I'm going to wrap up with a short montage from the auction (this does not cover all the items auctioned)...
http://www.ouch-us.org/gatherings/milcon06/auction1.wmv
and the Battle for the Shiney...
http://www.ouch-us.org/gatherings/milcon06/shineywar.wmv
As has been said many times, if you've never met another clusterhead, you just HAVE to and the OUCH Convention is the perfect place to do so. Please make plans to be in Richmond for the 2007 OUCH Convention. I look forward to seeing you all there.
Oh, yeah... Hey Donna! High Five!!!
http://www.ouch-us.org/gatherings/milcon06/highfive-youdawoman.wmv
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