Welcome to the OUCH Supporter Appreciation Page!
Our supporters are special to us. As such, we have set aside November 15, this year,
to honor all those who make our lives a little more bearable.
Please feel free to leave a message to your favorite supporter and show you care!
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There are now 58 messages in our guestbook.
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Ruthie AW Harper - aka Lady Luv
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Many thanks to Rosie, Shalunda, Bear & Bossette for your comfort and understanding of my pain and suffering when I am in battle with the beast.
Thank you for the many rides to ER, and for being my voice when I can only pray and cry in pain.
I would also like to offer an extra BIG thanks to all of my Clusterhead family and their supporters for just being who you are. And an extra special thanks to Racer and Jackie, two people who always seem to be there when their needed.
Peace & Blessings Always
LadyLuv 
Thursday, October 25, 2007 at 12:01 - USA - ILL
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Minime
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My darling Lotus.
Words cannot express how much your support for the seemingly neverending hell that clusters are means to me. The way you stand by me, through pain and agony, bringing me ice and oxygen and 'trex, the way you care so much how I feel before, during and after a hit. Honey, there are not enough words to say thank you properly, you do everything for me and help so many others too. THANK YOU with all my heart
Daniel
Thursday, November 15, 2007 at 20:15 - Australia
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Chuck
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Janie,  words aren't enough. Your support, encouragement, and love throughout our 22 years together, and especially during these last 10 living with this beast, have made all the difference. Things get tough when I am in the cycle and I see it. You see it too. However, we work through it and, we do come out of it. I am blessed. All my love forever, xoc 
Wednesday, November 14, 2007 at 18:15 - Maryland
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philip harrison
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Micaela , I love you . Thank you for your ongoing love and support . You called me back to life , after throwing the Dr.s and nurses out of my room . You are my baby girl {20y/o young woman} . Your love and support continue to renew me. ..I LOVE YOU ......... DAD
Wednesday, November 14, 2007 at 16:03 - red bank , nj , usa
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philip harrison
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Jamie , Thanks for being such a wonderful son and supporter. Last year you definately saved my life . I am so very proud of the man you have become . I love you and plan to be around to see you marry and love your children for many,many years . You are someone to be proud of . I LOVE YOU...... DAD
Wednesday, November 14, 2007 at 15:54 - red bank , nj , usa
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Mary Sullivan
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To my loving husband, HB; sisters, Therese, Cathy, Mom, and Dad and my BFF Judy, and of course Ziggy Dog:
Without the support of each and every one of you, I know I couldn't have made it 22 years with these demons. If I was by myself all this time, I would have ended it.
I'll bet 500 years ago, someone with CH would be burned at the stake as being possessed.
You've held my hand, taken me to ER and a number of doctors, cried with me and cheered with me (when they finally end!). We've analyzed and diagnosed from here to eternity and still come up with "what the hell causes these damn things?" You've prayed, sent me articles on new treatments, get "black cows" when the coast is clear and always give me words of encouragement.
I love you all Thank you, thank you, thank you my supporters!!!! - Mair
Wednesday, November 14, 2007 at 13:47 - Wisconsin, USA
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philip harrison
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LAURA, Words can't express my love and gratitude for your ongoing love and support through some incredibly painful and difficult years . I am sorry that I died 11/13/06 . Too many miracles to count , have left me forever yours . Thank you for hanging on and believing in my spirit , when the Dr.s had me gone . I will love you and will attempt to demonstrate my gratitude as long as I shall live. My wife , my best friend , my lover and my soulmate . You are my reason for fighting to stay alive . Together we will continue to fight my {our] beast . With a supporter like you, the beast had better beware. I LOVE YOU..... ..... phil h
Wednesday, November 14, 2007 at 15:46 - red bank , nj,usa
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Mastifflvr28
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OUCH Family Services Team,
Thanks so much for all your support guys. You go above and beyond the call of duty and seek out those that need help. Very commendable. 
Mast
Wednesday, November 14, 2007 at 14:06 - Washington
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WLB
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CPD,
25 years ago we exchanged promises: to love, honor, and cherish, for better or worse, for richer or poorer, in sickness and in health. Well, sweetie, you got more than your share of the sickness part with me.
I think you already know how much you mean to me, but I'll say it again. Without you by my side my life would be meaningless. Your love, devotion, caring, tenderness, and artistic expression (well, and your cooking, too) are an inspiration to me.
If I had it to do all over again, I'd only change one thing - I would have said "yes" the first time.
Thank you for wanting to be my wife. I love you.
WLB
Wednesday, November 14, 2007 at 11:24
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Charlotte H
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Hmmm, I am a supporter, not a sufferer but I didn't get here all by myself. We have just completed this first year of my daughter Lisa having CH and I want to thank several people for the support that they have given us. There have been several people but some of you have made such a wonderful impact in our life.
Charlotte, your patient way of listening, never giving too much information and being cautious not to overwhelm or scare me in the beginning, your friendship.
Tony and Guiessepi, thanks so much for being there and helping me get through so much last summer, always being there for Lisa and bringing a smile to our faces.
Pete, your counsel with o2 is incredible. Our skype talks and support, walking us through every hit and giving Lisa the confidence to stay calm.
Paul, my first true friend on the boards! I can ask you ANYTHING and you are so incredibly patient and nonjudgemental. Thank you!!! You are a true family friend.
Nani and Bob, you know what you've done for us!!!! Thanks so much for helping us eliminate so many drugs!!!!
Cyn, thanks for all of the early phone calls, letting me lean on you. I really hope we can visit more often.
and last but not least Linda, I don't need to say anything, you're here for all of us all of the time. Thank you so much for all you do!!! I still have my first desperate email to you!
 Thanks for everything, everyone!!!
Friday, November 9, 2007 at 22:45 - Maryland
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Karla
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Dearest Liz,
Thank you so much for being my best supporter and friend. Not only with ch but with life in general. With all you do with cards, calls, visits, etc. you are number one in my book and I love you beyond words. Thank you for being you.
Friday, November 9, 2007 at 08:11 - Madison, WI
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Rosa Murphy
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This big thank you is for you: my little girl. My best supporter, you are there for me all the time, every time.
Thank you for the cold packs, the soft kisses and holding hands.
Thanks for praying for me because I am sure your prayers are always listened.
Who would ignore a little angel's prayer?
and Thanks for being the biggest reason I remain strong and positive about the future because YOU are the future.
I Thank God for sending me the greatest gift of all, the pleasure to call you my daughter and hear you calling me: Mom.
I will love you forever and ever Mireille.
kisses
your Mommy
Friday, November 9, 2007 at 11:04 - Houston, TX
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Dape
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JULIE
No words i could write would ever be enough after what you have done for me.
I love you with all my heart, body & soul and i want to be with you for the rest of my life so............. WILL YOU MARRY ME 
Yes i know you have already said yes but i want to get married sooner rather than later so lets just do it, forget the aunts,uncles, cousins and the rest, we are the ones that matter. Please say yes and make me the happiest man alive. 
Thursday, November 8, 2007 at 18:10 - Upwell, UK
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LeLimey
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I can't not post my thanks to the family services team here at OUCH.
The good they do, day in, day out has to be seen to be believed.
They are always there for everyone and nothing is too much trouble.
I can't thank them or praise them enough - Linda your team ROCKS! Jackie, Cathi and Svenn - a very heartfelt thank you
Helen xxx
Wednesday, November 7, 2007 at 18:38 - England
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Helen Williams
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Once again I have more people to thank than my fair share.
My support is all online, without the love and friendship I have from other ch'ers and supporters here I wouldn't be able to go on day after day. I draw so much strength and inspiration from you all.
I'm humbled beyond words at how, not only to I get understanding from fellow ch'ers but I get so much support from other peoples supporters. People who already live in hell watching the people they love go through this and yet always find room in their hearts for me too. I can't thank you enough.
Speaking as someone who walks both sides of the line with having a child who suffer's I know it is far, far harder to deal with seeing someone else get hit than it is to deal with being hit. It hurts me far more knowing there is so little I can do to help aand that for me is the true agony of CH.
Our supporters can't be thanked enough, how high a value can you put on such selfless love?
It is such a small thing to say Thank You, it doesn't feel like nearly enough but to all of you, Thank you. Thank you for helping me to be "me".
With love, with respect and with gratitude
Helen xxx
Wednesday, November 7, 2007 at 07:25 - England
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Brian
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To My Darling Wife Donna,
Words can not express how I feel about you. You are my rock, my comforter, and my reason for living. Thank you for understanding and supporting me, even when I may not seem to appreciate you. When the pain starts, other thought take over. You understand this and see me through these times. I love you for this and many other reasons.
Sunday, October 28, 2007 at 11:18 - Near Cape Cod, MA United States
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Blair Geddis
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To Claire, you're new to my life but have a more caring and understanding (when i share the bad times) attitude than any partner i've ever had with regards these wee pains and med side effects.
You are special to me and i hope i don't lose you anytime soon. I'll always try to be there for you ANY time i can.
Your B
Friday, October 26, 2007 at 08:29 - Northern Ireland
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Tim
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I know I don't say it often, and never when I have the headaches--hard to say anything nice then--but thanks to you and the kids for trying so hard to help me through a difficult time when I'm I feel so bad. Thanks for trying to figure out what I mean, when I can't even talk, and not taking it personally when I am grumpy or mean. I love you Kim, Danielle and David, and hope we never have to go through a time like that again. (yeah, right)
Thursday, October 25, 2007 at 15:22 - Voorhees NJ
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Stuart
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Thank you, Veronica, for sticking with me and trying to come to terms with the beast. You'll never really appreciate how much it helps to know that someone is there who cares and who wants so much to help even when they can't take the pain away.
Thank you also to my mother whose soft, quiet voice all those miles away seems to soothe and calm me when the beast is driving me mad.
To all my other friends and acquaintances who have done their best to understand my occasionally erratic behaviour and unexplained absences over the past 25 years, I extend my heartfelt thanks and gratitude.
Wednesday, October 24, 2007 at 19:29 - Sydney, Australia
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Sanna (sandie99)
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To my supporters at home, Timo & the littleones, thank you for your support every day during this journey, your strength, your hugs, your exsistance. Thank you for loving me, as I am.
To my supporters here at the board... thank you for your advices, understanding, sense of humor, kindness & friendship.
Thank you from the bottom of my heart,
Sanna
Thursday, October 25, 2007 at 02:01 - Finland
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Steve (Istvan Totka)
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I'm not a man of words so:
Thanks!
Wednesday, October 24, 2007 at 14:27 - Budapest, Hungary
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Bev S 4evermore
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The time we have missed together will always be SPACE. The time together, now and forever....will always be LOVE. The excitment for growth is SCARY ! The truth is the love from my HEART. Just a grumpy old man lookin for love.....Thats you BEV !!
i guess this says it all.................
SPACE LOVE SCARY HEART......BEV
I understand and i will be your EVERYTHING.
LOVE
DAVE
Wednesday, October 24, 2007 at 21:05
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Karen Oakes-Diaz
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Thank-you to my family............ Auggie, my husband who is always there to comfort, get an ice pack, give me my shot and to watch the clock for the count down to no more pain. Thank you Auggie..........Thanks for living with me while I go through this horrible time and never complaining.Thanks you for that look in your eyes that you get that says, you'd take the pain yourself, instead of watching me suffer. Thank you for understanding about something you have never gone through, and don't class it with a regular headache.....THANK-YOU MY HUSBAND
Michael, thank you. You grew up watching mommy have "headaches".I missed things because of my cycles.You understood! Holding my hand in your tiny hand and telling me Mommy you'll be allright. As you grew and began to understand more, you knew just what to do.The ice packs, the shots and my count down watcher . Thanks for being at my side, understanding and holding my hand.THANK-YOU MY SON. MICHAEL
I have to say thanks to my pets.I know that sounds corny, but they were in tuned to my pain. They gave me comfort.Thanks Odie, Buggy, Pugs.
Thanks to O.U.C.H for all the current infomation, the feeling we are not alone.
Thanks to my doctors Dr. Keleman and the whole group in Plainview N.Y..They care, and understand, and always get me through my cycles. THANK-YOU Karen
Wednesday, October 24, 2007 at 18:49 - Bethpage, New York
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Ray
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To: My wife and greatest supporter, Shade
I love you more than you could possibly know. You have been there for me through countless cluster headaches, to hold my hand, give me an Imitrex shot, to support me with love and kindness.
Your support has never wavered. You've never made excuses, sent me off on my own to be alone in pain, or blamed me for my headaches. You are my best friend. You are my soulmate. You are the love of my life. You are my home.
I can't possibly thank you, nor show you how much I love you enough.
But I do Love YOU!
Ray
Wednesday, October 24, 2007 at 18:11 - Columbus, OH USA
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