Welcome to the OUCH Supporter Appreciation Page!
Our supporters are special to us. As such, we have set aside November 15, this year,
to honor all those who make our lives a little more bearable.
Please feel free to leave a message to your favorite supporter and show you care!
Click Here for help with formatting, posting pictures, clickable links, etc.
Add a message : O.U.C.H. Home Page : Search
There are now 69 messages in our guestbook.
1 2 3 >>>
Viewing messages 1 to 25. |
Clifford
|
The Beast has been in our lives for fifteen years.
My love's strength and kindness has been my salvation through all the years of confusion, doctors, medicines and the agonies of clusters as the unrelenting evils of our days and nights.
I admire her strength and I cherish her love. She has been the salvation of my life, and gives the rest of our family comfort and confidence.
Cynthia, Thank you. Thank you.
Tuesday, January 11, 2011 at 13:10 - NYC
|
|
Guiseppi
|
To the Queen. You found the original CH board for me, took me at gun point to the doctor to get these things figured out, you always arranges for meds, energy drinks, oxygen, and have REALLY stood by me through sickness and health. I may be about the luckiest CH'er on earth. Luv ya Queeny. 
Joe 
Monday, November 15, 2010 at 16:02 - San Diego
|
|
Ernie Moss a/k/a Wishbone
|
|
This message albeit inept is to my loving wife and supporter Julie. She has stood by me through all the pacing, head bashing/beating, rocking, tirades of anger, schedule changes, periods of my being a hermit, dashes to get more O2 tanks or drug store for zomig/imitrex. All of this without complaint, but much love. Yes I endure the pain but in many ways I know Julie and all of the supporters suffer more I or we do because she must sit or hide helpless by as I or we battle the demon. I know there have been times I would have given up had I not had Julie by my side. Words cannot express what she means to me and has meant to me living a life with cluster headaches. Julie
Monday, November 15, 2010 at 15:54 - Birmingham, AL
|
|
Kevin
|
To my family,
I know that there have been times that plans have changed because I have been afflicted with this debilitating headache problem. You have stood by me late nights while I paced the floor and sucked down oxygen like it's going out of style. I know it is hard for you to see me in pain like that. Please accept my gratitude for being there when I do go through these bouts. It helps knowing that you'll always be there. Again, thank you.
Love, Kevin
Monday, November 15, 2010 at 15:09 - Flanders, NJ
|
|
thebb
|
Thank you, Thank you, Thank you.!!! Direct supporters take it right on the chin, for that we bow to your grace. Indirect supporters are mostly unknown and behind the scene, cluster angels, mysterious packages show up that eases the pain. 02 parts are sent and help is not asked for. To those that do these things you know who you are. I Love you guys. Dont stop helping others it is what makes us uniquely human. supporters.
the bb
Wednesday, November 10, 2010 at 14:53 - alpha centari
|
|
Brew
|
As always, thanks for being there for me in sickness and in health. I would not be here writing this message if it weren't for you.
You rock.
Wednesday, November 10, 2010 at 13:34 - Menomonee Falls, WI
|
|
karl johnston
|
Angel the Lord has sent me a lovely gift in you. you have taken the time to lean about this monster in my head ,the shots,the oxygen, the lidocaine gel,energy drinks,ice etc etc etc. You put up my with crazy antics and the terrible things i say and do. but the best medicine i have in my arsenal is that hand on me that tells me your there for me and telling i have value and i am not just a freak with headaches.
today i honor you  
Wednesday, November 10, 2010 at 13:42 - Idaho
|
|
Chad
|
|
To my lovely wife who has put up with my crap for so many years. Just the fact that you let me escape while going through cycles is enough. You give me my time and space and I owe everything to you for understanding this condition. I try to make this up when in remission. I also want to thank my 3.5 YO son who simulates me with his Spiderman ice pack on his right eye, lol! If certainly gives me a chuckle when in cycle. I love you all!
Wednesday, November 10, 2010 at 08:39 - Emmaus, PA
|
|
Boyce
|
|
My wife is the best. She is always calm and supportive during my CHA cycles. She rearranges everything in our busy lives to support me. I never remember to say thank you, but maybe this message will convey how thankful I am.
Wednesday, November 10, 2010 at 08:33 - Columbus, IN
|
|
Pete M
|
Q- I can't comprehend how you can stay with me, even as my 22 year journey to the 7th ring of Hell worsens. 8 a day has left me nearly worthless; I would long ago have checked out without your love and support, and words are inadequate. You are my shining light in the black hole of this terrible disease.
Royal- my amigo de renir. I cannot tell you how much it saddens me to see what this malignant beast is doing to you; all that you have lost. Many times just knowing someone out there understands helps; and I hope I can help you on your journey as well. Someday...
Wednesday, November 10, 2010 at 00:01 - Thornville, Ohio
|
|
WEBMISSTRESS
|
|
SUPPORTERS ROCK!
Tuesday, November 9, 2010 at 14:28 - San Diego
|
|
Ruthie AW Harper - aka Lady Luv
|
Many thanks to Rosie, Shalunda, Bear & Bossette for your comfort and understanding of my pain and suffering when I am in battle with the beast.
Thank you for the many rides to ER, and for being my voice when I can only pray and cry in pain.
I would also like to offer an extra BIG thanks to all of my Clusterhead family and their supporters for just being who you are. And an extra special thanks to Racer and Jackie, two people who always seem to be there when their needed.
Peace & Blessings Always
LadyLuv
Thursday, October 25, 2007 at 12:01 - USA - ILL
|
|
Minime
|
My darling Lotus.
Words cannot express how much your support for the seemingly neverending hell that clusters are means to me. The way you stand by me, through pain and agony, bringing me ice and oxygen and 'trex, the way you care so much how I feel before, during and after a hit. Honey, there are not enough words to say thank you properly, you do everything for me and help so many others too. THANK YOU with all my heart
Daniel
Thursday, November 15, 2007 at 20:15 - Australia
|
|
Chuck
|
|
Janie, words aren't enough. Your support, encouragement, and love throughout our 22 years together, and especially during these last 10 living with this beast, have made all the difference. Things get tough when I am in the cycle and I see it. You see it too. However, we work through it and, we do come out of it. I am blessed. All my love forever, xoc
Wednesday, November 14, 2007 at 18:15 - Maryland
|
|
philip harrison
|
|
Micaela , I love you . Thank you for your ongoing love and support . You called me back to life , after throwing the Dr.s and nurses out of my room . You are my baby girl {20y/o young woman} . Your love and support continue to renew me. ..I LOVE YOU ......... DAD
Wednesday, November 14, 2007 at 16:03 - red bank , nj , usa
|
|
philip harrison
|
|
Jamie , Thanks for being such a wonderful son and supporter. Last year you definately saved my life . I am so very proud of the man you have become . I love you and plan to be around to see you marry and love your children for many,many years . You are someone to be proud of . I LOVE YOU...... DAD
Wednesday, November 14, 2007 at 15:54 - red bank , nj , usa
|
|
Mary Sullivan
|
To my loving husband, HB; sisters, Therese, Cathy, Mom, and Dad and my BFF Judy, and of course Ziggy Dog:
Without the support of each and every one of you, I know I couldn't have made it 22 years with these demons. If I was by myself all this time, I would have ended it.
I'll bet 500 years ago, someone with CH would be burned at the stake as being possessed.
You've held my hand, taken me to ER and a number of doctors, cried with me and cheered with me (when they finally end!). We've analyzed and diagnosed from here to eternity and still come up with "what the hell causes these damn things?" You've prayed, sent me articles on new treatments, get "black cows" when the coast is clear and always give me words of encouragement.
I love you all Thank you, thank you, thank you my supporters!!!! - Mair
Wednesday, November 14, 2007 at 13:47 - Wisconsin, USA
|
|
philip harrison
|
|
LAURA, Words can't express my love and gratitude for your ongoing love and support through some incredibly painful and difficult years . I am sorry that I died 11/13/06 . Too many miracles to count , have left me forever yours . Thank you for hanging on and believing in my spirit , when the Dr.s had me gone . I will love you and will attempt to demonstrate my gratitude as long as I shall live. My wife , my best friend , my lover and my soulmate . You are my reason for fighting to stay alive . Together we will continue to fight my {our] beast . With a supporter like you, the beast had better beware. I LOVE YOU..... ..... phil h
Wednesday, November 14, 2007 at 15:46 - red bank , nj,usa
|
|
Mastifflvr28
|
OUCH Family Services Team,
Thanks so much for all your support guys. You go above and beyond the call of duty and seek out those that need help. Very commendable. 
Mast
Wednesday, November 14, 2007 at 14:06 - Washington
|
|
WLB
|
CPD,
25 years ago we exchanged promises: to love, honor, and cherish, for better or worse, for richer or poorer, in sickness and in health. Well, sweetie, you got more than your share of the sickness part with me.
I think you already know how much you mean to me, but I'll say it again. Without you by my side my life would be meaningless. Your love, devotion, caring, tenderness, and artistic expression (well, and your cooking, too) are an inspiration to me.
If I had it to do all over again, I'd only change one thing - I would have said "yes" the first time.
Thank you for wanting to be my wife. I love you.
WLB
Wednesday, November 14, 2007 at 11:24
|
|
Charlotte H
|
Hmmm, I am a supporter, not a sufferer but I didn't get here all by myself. We have just completed this first year of my daughter Lisa having CH and I want to thank several people for the support that they have given us. There have been several people but some of you have made such a wonderful impact in our life.
Charlotte, your patient way of listening, never giving too much information and being cautious not to overwhelm or scare me in the beginning, your friendship.
Tony and Guiessepi, thanks so much for being there and helping me get through so much last summer, always being there for Lisa and bringing a smile to our faces.
Pete, your counsel with o2 is incredible. Our skype talks and support, walking us through every hit and giving Lisa the confidence to stay calm.
Paul, my first true friend on the boards! I can ask you ANYTHING and you are so incredibly patient and nonjudgemental. Thank you!!! You are a true family friend.
Nani and Bob, you know what you've done for us!!!! Thanks so much for helping us eliminate so many drugs!!!!
Cyn, thanks for all of the early phone calls, letting me lean on you. I really hope we can visit more often.
and last but not least Linda, I don't need to say anything, you're here for all of us all of the time. Thank you so much for all you do!!! I still have my first desperate email to you!
 Thanks for everything, everyone!!!
Friday, November 9, 2007 at 22:45 - Maryland
|
|
Karla
|
Dearest Liz,
Thank you so much for being my best supporter and friend. Not only with ch but with life in general. With all you do with cards, calls, visits, etc. you are number one in my book and I love you beyond words. Thank you for being you.
Friday, November 9, 2007 at 08:11 - Madison, WI
|
|
Rosa Murphy
|
This big thank you is for you: my little girl. My best supporter, you are there for me all the time, every time.
Thank you for the cold packs, the soft kisses and holding hands.
Thanks for praying for me because I am sure your prayers are always listened.
Who would ignore a little angel's prayer?
and Thanks for being the biggest reason I remain strong and positive about the future because YOU are the future.
I Thank God for sending me the greatest gift of all, the pleasure to call you my daughter and hear you calling me: Mom.
I will love you forever and ever Mireille.
kisses
your Mommy
Friday, November 9, 2007 at 11:04 - Houston, TX
|
1 2 3 >>> |
