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You know you're a Cluster Headache Supporter
IF....
Ø Have you ever had to leave a public event because your loved one is getting
attacked?
Ø Have you ever had to make explanations to the ‘lay person’ and try to get
them to understand something that you don’t even understand yourself?
Ø Have you ever noticed the signals of an impending attack before your loved
one feels any pain?
Ø Have you ever had to stay home for what seems like forever because you’re
both afraid to go out in case the Cluster Beast visits?
Ø Is it like living with a time bomb in the closet?
Ø Are you afraid to talk about it, for fear you will ‘jinx’ him/her to have
another attack?
Ø Do you get angry and frustrated that cluster headaches have invaded your
life?
Ø Do you feel totally helpless?
Ø Do you feel like you are losing yourself in the process of trying to help?
Ø Are you afraid to leave your loved one alone, in case they get attacked, even
though you know you can’t do anything to help?
If you answered ‘yes’ to any or all of these questions, then you qualify as
a cluster headache supporter. And you know what, gang? Sometimes it really sucks
to be us.
The good news is that cluster supporters no longer have to be alone with what we
go through in our daily lives. We understand all too well what it is like to
watch someone we love go through cluster pain. We, too, feel totally helpless
that we can’t make this pain stop. But we can help EACH OTHER and learn how to
support together. At www.clusterheadaches.com
there are areas designed for supporters
to talk to each other. Click the following link to take you directly to the
message boards:
http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi
There is always someone around the computer and we always have time to sit down
and share our war stories with you. We understand the fear, the anger, the
frustration and yes, the guilt that you feel when you feel all those other
emotions.
So, please feel free to ask for help if you need it. We are pretty much
shockproof and everything you need to get off your chest will remain
confidential. Even if you need to just tell us what happened today, we’ll
listen. You’ll probably be surprised that you’re not the only one who goes
through exactly what you do. We are kindred souls, we cluster supporters. All
you have to do is put up a post and tell your story and other supporters
will jump in to help you and, if you’d rather talk “in private”
– there is a private messaging system on the board.
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